NIH/NationaI Institute of Arthritis and Musculoskeletal and Skin Diseases
Information Clearinghouse
One AMS Circle
Bethesda, MD 20892-3675
USA
Tel: (301)495-4484
Fax: (301)718-6366
Tel: (877)226-4267
TDD: (301)565-2966
Email: NIAMSinfo@mail.nih.gov
Internet: http://www.niams.nih.gov/
MHE Coalition
6783 York Road, Apt. #104
Parma Heights, OH 44130-4596
USA
Tel: (440)842-8817
Email: CheleZ1@yahoo.com
Internet: http://www.mhecoalition.com/
MHE and Me- A Support Group for Kids with Multiple Hereditary Exostoses
PO Box 651
Pine Island, NY 10969-0651
USA
Tel: (845)258-6058
Fax: (845)258-6058
Email: mheandme@yahoo.com
Internet: http://www.mheandme.com/
MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay, WI 54301-1243
USA
Tel: (920)336-5333
Fax: (920)339-0995
Tel: (877)336-5333
Email: mums@netnet.net
Internet: http://www.netnet.net/mums/
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Email: http://rarediseases.info.nih.gov/GARD/EmailForm.aspx
Internet: http://rarediseases.info.nih.gov/GARD
MHE Research Foundation
79-77 Street
Brooklyn, NY 11209
Tel: (718)569-0479
Fax: (201)786-1758
Tel: (877)486-1758
Email: sarahziegler@mheresearchfoundation.org
Internet: http://mheresearchfoundation.org/
informação retirada do site: http://children.webmd.com/exostoses-multiple
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